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JOurnal #2 - Mommy's Entry

I never did expect that I will experience this kind of delima. How do I handle it? well, I treat it as a positive experience, God would not given it to me if I can not handle it. A mother suffers the most when her child is in danger but a mother can also sacrifice every inch of her mind, body and soul for the benefit of her child. This is not an easy task but I handle it very well I think. With the tasks to make, go to the doctor, catheter her, let her wear shoe and let her feel positive about herself I've been trying all of this especially in administering catheter her. No one life to do this task not even my own mother or my husband, its very hard for them seeing Shyra suffering, but I handle it very well, at first I hesitated because I do not know what I am doing but with the positive talk from the urologist I overcome the stress and fear. I have become a nagger and an O.C. when it comes to Shyra's concerns, always nagging the Nanny on what to do. But if it can help my baby why not, but I reminded myself to behave and not to be obsessed about it to prevent stress and misunderstanding. I always think of Shyra as a gift or as a special child not as a disabled child.This way I never have to be depress and not do anything about it. It is a very hard role for me to act but with the help of prayers and positive thoughts I concur the difficulty and win! I love her as much as I love Nicole.

Shyra Viodoes

Follow up Check up with Dra. Deleon PT

The visit to the PT was a good one, her right foot shows good result, it respond to a sensation already. But the left foot have a different result, it do not respond yet and it is still inverted. The doctor's advice now is to exercise both foot and wear the dennis brown splint from mondays to fridays only. She wanted the foot to be rested during saturdays. This signs give me a lot more hope that she can walk as I have expected. Thank You Very Much

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www.spinabifidamoms.com - management of myelomeningocele study
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Journal #1 Mommy's Entry

Shyra's Developments 6 Months
Shyra have stronger back and neck now so she can roll from left to right, that is why it is not advisable to place her alone on a bed even if it had pillow barrier, her crib is not suitable also because her dennis brown splint and orthopedic shoes got caught on the sides. So we prefer putting her on a mat on a floor to prevent accidents.
She is an attention seeker, when no one looks at her or pay attention to her she always scream and cry, when go to work she wants to come with me and if I do not pick her up she will cry. Filipinos call it as "Naghahabol".
Shyra now holds and plays with different things and when somebody took it from her she will cry.
She smiles a lot and coos all the time, she plays with her saliva and makes different noises. When she wants something she always makes the same sounds. When she wants milk she say "didi", when she wants water she says "nbig", when she plays with ate Nicole she says "Tche".
She can now remove her shoes and her socks.

Update Pictures Of Shyra

Shyra sitting down on the floor without support with her Papa and Ate Nicole
She is wearing a Dennis Brown Splint with Orthopidic Shoes prescribed by her PT.
Shyra sitting at the high chair of Max restaurant reading the menu
By this time she is 6 months already

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