What is spina bifida?
Well.... according to the dictionary, Spina Bifida is a congenital defect in which the spinal column is imperfectly cosed so that part of the meningese or spinal chord protrudes, often resulting in hydrocephalus or other neurogical disorder.
What is Meningocele?
A moderatesevereform of spina bifida in which the meningesprotrude, causing a buldge under the skin.
Tuesday, May 26, 2009
Words of thanks
Dear Everybody,
I thank you for all the blessings you have given me..... this is the best gift a baby could get, a normal life. Thank you for my mother and father's friends, co-workers and unknown persons who gave help financially, mentally and spiritually. To my families, Lola Ezcel, Lolo Vic, Nanay Zenaida and Tatay Anghelito. TO my Revillame Family, To my Ramirez Family, to my Abrenica family and to my Salvacion Family. Especially Lola Lyn, Tita Ruth, Lolo Dodo, Lolo Ceasar and Family, Lolo Raymond, Lola Cynts, Tita Cy, Tito Ten, Tito Arcy, and Tita Tess who stayed beside me during my operation and recovery at quezon city. To my other titos and titas who offered prayers and donations, Lola Tin Salvacion and Family, Tita Beng and Tita Grace and family. Thank you Lola Liza Mendoza and Lola Ma'am Gloria Potes and to everybody that stood by me and cared for me.
Thank you to my doctors who cared for me, Dra. Remojo my Pedia who gave me shots, vitamins and prep me for the operation, to Dr Gerard Salazar for refering us to great doctors, To Dra. Malen Ortiz for giving me hope and always monitors my improvement and complementing me with my remarkable talents and always smiles at me, to my Neuro Surgeon Dra. Ibet Sih for operating my meningocele and believing that I will live a normal life, to my Urologist Dr. Dave Bolong and his assistants Ms. Jackie and Ms Emily for helping me get thru normal life and to Dra. Teresa Deleon for Believing in me that I can still walk!!!! To Tito Ernie for making me my Dennis Brown splint and orthopedic shoes! Thank you very much.
To my ate Lilo and Ate Nicole and to my mommy and daddy I love you!!!! and I promise you that I will walk and live a normal life that you have been dreaming.
Thank you to God for giving me a good chance for the life that I want to Have.
SHYRA
I thank you for all the blessings you have given me..... this is the best gift a baby could get, a normal life. Thank you for my mother and father's friends, co-workers and unknown persons who gave help financially, mentally and spiritually. To my families, Lola Ezcel, Lolo Vic, Nanay Zenaida and Tatay Anghelito. TO my Revillame Family, To my Ramirez Family, to my Abrenica family and to my Salvacion Family. Especially Lola Lyn, Tita Ruth, Lolo Dodo, Lolo Ceasar and Family, Lolo Raymond, Lola Cynts, Tita Cy, Tito Ten, Tito Arcy, and Tita Tess who stayed beside me during my operation and recovery at quezon city. To my other titos and titas who offered prayers and donations, Lola Tin Salvacion and Family, Tita Beng and Tita Grace and family. Thank you Lola Liza Mendoza and Lola Ma'am Gloria Potes and to everybody that stood by me and cared for me.
Thank you to my doctors who cared for me, Dra. Remojo my Pedia who gave me shots, vitamins and prep me for the operation, to Dr Gerard Salazar for refering us to great doctors, To Dra. Malen Ortiz for giving me hope and always monitors my improvement and complementing me with my remarkable talents and always smiles at me, to my Neuro Surgeon Dra. Ibet Sih for operating my meningocele and believing that I will live a normal life, to my Urologist Dr. Dave Bolong and his assistants Ms. Jackie and Ms Emily for helping me get thru normal life and to Dra. Teresa Deleon for Believing in me that I can still walk!!!! To Tito Ernie for making me my Dennis Brown splint and orthopedic shoes! Thank you very much.
To my ate Lilo and Ate Nicole and to my mommy and daddy I love you!!!! and I promise you that I will walk and live a normal life that you have been dreaming.
Thank you to God for giving me a good chance for the life that I want to Have.
SHYRA
Shyra on ICU
Shyra at ICU after the operation.Shyra was a fighter. after operation she was already cried and ask for a milk after 3 hours and less than 12 hours she was out of the ICU. She is a rela fighter! After 3 days she can lift her head and flatter everyone who visit her with a killer smile.
A Letter for Everybody
Dear Sir / Ma'am,
A child is God's Gift to us. He / she is brought into this world to have a special place and to grow for a certain mission. He/she is to be nurtured and taken cared of... to be showered with love and affection and most of all to be healed when afflicted.
Great joy and excitement filled our hearts on the birth ofour beloved, little angel named Shyra on December 5, 2008. She is the second child of Grace Ceril Salvacion Abrenica Orogo and Richard A. Revillame. Shyra is a very healthy baby, at the time of birth weighing 3.8 kgs., only to find out on the third day that the baby has a mass on the right part of the buttocks. The pediatrician and neurologists (Dra. Remojo and Dr. Gerard Salazar) in Lucena City told us that they suspect that Shyra has meninggocele and would be best to consult a neuropediatrician specialist at the Philippine Children's Medical Center at Quezon City.
Check up done by the pedia - nueurologist (Dra. Malen H. Ortiz), pulmonologist (Dr. Cabanilla), Neuro Surgeon (Dra. Ibe Sih) and Urologist Dr. David Bolong made us understand the urgency of having an immediate surgery. Our hearts broke down when our brave little andel withstood the pain of six hours fasting and being anaesthetized fo the MRI. The MRI gave us a clear picture of what is happening to her and paved the way on how the doctors will handle her case. The MRI result showed that the baby has low lying spinal cord terminating at the L5 S1 level, where the neural placode is noted at be tethered against the fatty component of a lumboscral lipomeningocele. An immediate surgery to prevent irreversable dameades(i.e. meningitis, kidney problem, inability to walk......) as the baby grows. As early as now, the urologist found that the effect is already seen in the urinary bladder not releasing all the urine the normal way. if not operated on, her kidneys might be completely damege by age 5.
We are knocking at your beloved heart to extend whatever assistance you could offer, particullarly yor prayers for shyra be able to live a normal and happy life.
May God Bless you always for your grateful and kinderheart!
Very Truly Yours,
Grace and Richard
Parents
A child is God's Gift to us. He / she is brought into this world to have a special place and to grow for a certain mission. He/she is to be nurtured and taken cared of... to be showered with love and affection and most of all to be healed when afflicted.
Great joy and excitement filled our hearts on the birth ofour beloved, little angel named Shyra on December 5, 2008. She is the second child of Grace Ceril Salvacion Abrenica Orogo and Richard A. Revillame. Shyra is a very healthy baby, at the time of birth weighing 3.8 kgs., only to find out on the third day that the baby has a mass on the right part of the buttocks. The pediatrician and neurologists (Dra. Remojo and Dr. Gerard Salazar) in Lucena City told us that they suspect that Shyra has meninggocele and would be best to consult a neuropediatrician specialist at the Philippine Children's Medical Center at Quezon City.
Check up done by the pedia - nueurologist (Dra. Malen H. Ortiz), pulmonologist (Dr. Cabanilla), Neuro Surgeon (Dra. Ibe Sih) and Urologist Dr. David Bolong made us understand the urgency of having an immediate surgery. Our hearts broke down when our brave little andel withstood the pain of six hours fasting and being anaesthetized fo the MRI. The MRI gave us a clear picture of what is happening to her and paved the way on how the doctors will handle her case. The MRI result showed that the baby has low lying spinal cord terminating at the L5 S1 level, where the neural placode is noted at be tethered against the fatty component of a lumboscral lipomeningocele. An immediate surgery to prevent irreversable dameades(i.e. meningitis, kidney problem, inability to walk......) as the baby grows. As early as now, the urologist found that the effect is already seen in the urinary bladder not releasing all the urine the normal way. if not operated on, her kidneys might be completely damege by age 5.
We are knocking at your beloved heart to extend whatever assistance you could offer, particullarly yor prayers for shyra be able to live a normal and happy life.
May God Bless you always for your grateful and kinderheart!
Very Truly Yours,
Grace and Richard
Parents
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